In the late 1950s, vaccination against polio was developed and exported to the UK. However, tens of thousands of people who survived the epidemics of the first half of the 20th Century are still living in the UK.

Many have been able to live fulfilling, independent lives, often following extensive rehabilitation. However, years later, some are now experiencing new polio-related symptoms for which they need to seek help. These may result from the original weakness and orthopaedic problems or may be Post Polio Syndrome - a neurological condition which can occur in people who have had polio. Symptoms could also be the result of other health issues unrelated to polio.

It is important to seek appropriate advice, information and referral where there are new symptoms and to ensure ongoing management of pre-existing symptoms or other health conditions.

Symptoms include the onset of new weakness or abnormal fatigue in previously affected or unaffected muscles, a general reduction in stamina, muscle and/or joint pain, muscle atrophy, breathing, sleeping and/or swallowing problems or cold intolerance. Symptoms may lead to loss of endurance or function.

A diagnosis of Post Polio Syndrome assumes the absence of any other condition that could explain the above symptoms. Such conditions should be considered and excluded by appropriate investigations.

Post Polio Syndrome usually begins very slowly, although it can appear suddenly. Events like falls, surgery or immobility can seem to be trigger factors. Post Polio Syndrome occurs irrespective of age, and in people who had paralytic or non-paralytic polio.

There is no specific cure for Post Polio Syndrome, but properly managed it may stabilise or only progress slowly.

Much can be done to retain independence, including appropriate treatment for symptoms, self-management strategies such as pacing and energy management, appropriate use of adaptive equipment, looking after your general health, and social and emotional support.

It is important for people with Post Polio Syndrome to be referred for assessment by healthcare professionals with knowledge of polio and Post

Learn more by ordering your copy of the Post Polio Syndrome Guide £5 plus £2.50 postage and packing.

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