WHAT IS POST POLIO SYNDROME

Post Polio Syndrome is a poorly understood condition that can affect people who have had polio in the past.

Polio is a viral infection that used to be common in the UK, but is now rare.

Most people who had Polio would have fought off the infection without even realising they were infected.

Some people with Polio would have had paralysis, muscle weakness and shrinking of the muscles. But usually, these problems would have either gone away over the following weeks or months, or remained the same for years afterwards.

Post Polio Syndrome is where some of these symptoms return or get worse many years or decades after the original polio infection.

SYMPTOMS OF POST POLIO SYNDROME

Post Polio Syndrome can include a wide range of symptoms that develop gradually over time, including:

persistent fatigue (extreme tiredness)
muscle weakness
shrinking muscles
muscle and joint pain
sleep apnoea

The condition can have a significant impact on everyday life, making it very difficult to get around and carry out certain tasks and activities. The symptoms tend to get gradually worse over many years, but this happens very slowly and treatment may help slow it down further.

Post Polio Syndrome is rarely life-threatening, although some people develop breathing and swallowing difficulties that can lead to serious problems, such as chest infections.

WHO'S AFFECTED

Post Polio Syndrome only affects people who've had polio. It usually develops 15 to 40 years after the infection.

The condition has become more common in the UK in recent years, because of the high number of Polio cases that occurred during the 1940s and 1950s, before routine vaccination was introduced. It's estimated that there are around 120,000 people living in the UK who survived Polio when they were younger. Some of these have, or will develop, Post Polio Syndrome.

It's not known exactly how many Polio survivors are or will be affected by Post Polio Syndrome. Estimates vary from as low as 15% to as high as 80%.

WHAT CAUSES POST-POLIO SYNDROME?

The exact cause of post Polio Syndrome is unclear. It's not known whether anything can be done to prevent it.

The leading theory is that it's the result of the gradual deterioration of nerve cells in the spinal cord (motor neurones) that were damaged by the Polio virus. This would explain why the condition can take years to appear.

Post Polio Syndrome isn't contagious. The theory that the Polio virus may lie dormant in your body, causing Post Polio Syndrome when it becomes reactivated at a later stage, has been disproven.

It's not clear why only some people who've had polio develop Post Polio Syndrome. Those who had severe Polio when they were younger may be more likely to develop the condition.

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FUNDRAISING

There are many different ways you can get involved and help us raise vital funds for Polio survivors. Below you can find all the different ways you can make a difference.

Got an idea that's not there? Get in touch! We love to hear about all the unique great ideas you have and would love to help make them happen!

Complete A Challenge

Why not push yourself to do something amazing whilst raising funds for an important cause. We've got you covered from running to sky diving. Click the link above to find out more!

Fancy bringing your friends and family together for a worthy cause? Why not host a tea and coffee morning or liven things up with a charity cocktail party. Follow the link above more ideas and tools to make your event a success.

Recycle For Charity

Thanks to our charity recycling schemes you can now raise vital funds whilst saving the planet. For a full list follow the link above.

Another great and simple way to raise funds is through the shopping online you are already doing. Our great partners help raise funds for us every time you shop. For a full list of partners click the link above.

Christmas Cards

Every year the Fellowship sells Christmas cards to raise funds for the charity. This year we have three designs which can be purchased through the link above.

Free Will Service

We have partnered with McClure Solicitors to provide free wills for all those in need. Just make a donation to the Fellowship and they will provide a top quality free will service. To find out more follow the link above