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  • Writer's pictureThe British Polio Fellowship

Big member survey produces interesting results




In March and April of this year, the British Polio Fellowship conducted a Big Survey of its members and over a thousand people responded. The results suggested support and guidance for polio survivors is needed more than ever.


Over the years there has been a rise in polio survivors being diagnosed with Post-Polio Syndrome (PPS) and yet, GPs and consultants are becoming increasingly uninformed about the condition.


Closer collaboration between healthcare professionals and the British Polio Fellowship, has resulted in the creation of an Optimal Care Pathway for people effected by polio (including late effects of polio and PPS). The pathway will be launched early 2024.


Additionally, a significant number of members don’t fully know what post-polio treatment they need or they aren’t satisfied with the local services they have available. This alone has demonstrated the importance of the Fellowship’s work. It must raise awareness of late effects of polio and PPS, and continue to support members; physically, financially, and psychologically.


Key findings from the survey can be found here


BPF Big Survey 2023 Results
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Survey Highlights


Age Range of survey respondents: 26 – 94 years


How old you were when you contracted polio?

  1. 2 - 5 years: 36%

  2. 13 - 24 months: 21%

  3. 0 - 12 months: 19%

  4. 6 - 10 years; 16%

  5. 11 - 20 years: 6%

  6. 20+ years: 2%


GPs and consultants seen by members who know about polio, late effects of polio and PPS

  • 50% of GPs and 52% of consultants knew about polio

  • 30% of GPs and 44% of consultants knew about late effects of polio

  • 32% of GPs and 44% of consultants knew about PPS


Members who have or think they have PPS: 89%


If you have used these local services, were you satisfied with them for your polio matters?


Always

Never or only sometimes

Physiotherapists

25%

75%

Orthotics

37%

63%

Podiatry

56%

44%

Orthopaedic

33%

67%

Neurologist

38%

62%

Cardiologist

45%

55%

Occupational therapy

33%

67%

Dietitians

16%

84%

Respiratory

38%

62%

Weight management

16%

84%

Rehabilitation

30%

70%

Sleep disorders

28%

72%

Psychology

8%

92%


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