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WHAT IS POST POLIO SYNDROME

Post Polio Syndrome is a poorly understood condition that can affect people who have had polio in the past.

Polio is a viral infection that used to be common in the UK, but is now rare.

Most people who had Polio would have fought off the infection without even realising they were infected.

Some people with Polio would have had paralysis, muscle weakness and shrinking of the muscles. But usually, these problems would have either gone away over the following weeks or months, or remained the same for years afterwards.

Post Polio Syndrome is where some of these symptoms return or get worse many years or decades after the original polio infection.

SYMPTOMS OF POST POLIO SYNDROME

Post Polio Syndrome can include a wide range of symptoms that develop gradually over time, including:

persistent fatigue (extreme tiredness)
muscle weakness
shrinking muscles
muscle and joint pain
sleep apnoea

The condition can have a significant impact on everyday life, making it very difficult to get around and carry out certain tasks and activities. The symptoms tend to get gradually worse over many years, but this happens very slowly and treatment may help slow it down further.

Post Polio Syndrome is rarely life-threatening, although some people develop breathing and swallowing difficulties that can lead to serious problems, such as chest infections.

WHO'S AFFECTED

Post Polio Syndrome only affects people who've had polio. It usually develops 15 to 40 years after the infection.

The condition has become more common in the UK in recent years, because of the high number of Polio cases that occurred during the 1940s and 1950s, before routine vaccination was introduced. It's estimated that there are around 120,000 people living in the UK who survived Polio when they were younger. Some of these have, or will develop, Post Polio Syndrome.

It's not known exactly how many Polio survivors are or will be affected by Post Polio Syndrome. Estimates vary from as low as 15% to as high as 80%.

WHAT CAUSES POST-POLIO SYNDROME?

The exact cause of post Polio Syndrome is unclear. It's not known whether anything can be done to prevent it.

The leading theory is that it's the result of the gradual deterioration of nerve cells in the spinal cord (motor neurones) that were damaged by the Polio virus. This would explain why the condition can take years to appear.

Post Polio Syndrome isn't contagious. The theory that the Polio virus may lie dormant in your body, causing Post Polio Syndrome when it becomes reactivated at a later stage, has been disproven.

It's not clear why only some people who've had polio develop Post Polio Syndrome. Those who had severe Polio when they were younger may be more likely to develop the condition.

Contacts us: 0800 043 1935
Email us: info@britishpolio.org.uk

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BPF honours volunteers making a difference

The British Polio Fellowship
Sep 18
1 min read

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Having collated the nominations for the Barbara Wood Citizens Award award (categories - polio and non-polio) the winners were announced during this years’ British Polio Fellowship’s Annual General Meeting (AGM) on Thursday 18 September.

To quality all nominations needed to have gone the extra mile for the British Polio Fellowship (BPF). Candidates are judged by a panel to ensure a robust award process.

“These awards remind us of the enormous contribution volunteers make and the positive impact they have on the lives of polio survivors”, commented Kripen Dhrona, CEO.

Linda Evers passed away last month but has been awarded a posthumous polio award having provided considerable expertise in supporting her local branch in Leeds and the Yorkshire region over the years, and most recently acting as a Trustee on the BPF Board.

Les Attwood and Susan Kay-Attwood picked up the non-polio member Barbara Wood Citizens award for their support and hard work each year to ensure the Kurling event at the National Indoor Games goes well, and for their contributions to the successes of both the Sheffield Branch and Yorkshire region.

The Fellowship congratulate the winners and all nominees for their hard work, commitment and generosity in supporting the polio community.

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