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WHAT IS POST POLIO SYNDROME

Post Polio Syndrome is a poorly understood condition that can affect people who have had polio in the past.

Polio is a viral infection that used to be common in the UK, but is now rare.

Most people who had Polio would have fought off the infection without even realising they were infected.

Some people with Polio would have had paralysis, muscle weakness and shrinking of the muscles. But usually, these problems would have either gone away over the following weeks or months, or remained the same for years afterwards.

Post Polio Syndrome is where some of these symptoms return or get worse many years or decades after the original polio infection.

SYMPTOMS OF POST POLIO SYNDROME

Post Polio Syndrome can include a wide range of symptoms that develop gradually over time, including:

persistent fatigue (extreme tiredness)
muscle weakness
shrinking muscles
muscle and joint pain
sleep apnoea

The condition can have a significant impact on everyday life, making it very difficult to get around and carry out certain tasks and activities. The symptoms tend to get gradually worse over many years, but this happens very slowly and treatment may help slow it down further.

Post Polio Syndrome is rarely life-threatening, although some people develop breathing and swallowing difficulties that can lead to serious problems, such as chest infections.

WHO'S AFFECTED

Post Polio Syndrome only affects people who've had polio. It usually develops 15 to 40 years after the infection.

The condition has become more common in the UK in recent years, because of the high number of Polio cases that occurred during the 1940s and 1950s, before routine vaccination was introduced. It's estimated that there are around 120,000 people living in the UK who survived Polio when they were younger. Some of these have, or will develop, Post Polio Syndrome.

It's not known exactly how many Polio survivors are or will be affected by Post Polio Syndrome. Estimates vary from as low as 15% to as high as 80%.

WHAT CAUSES POST-POLIO SYNDROME?

The exact cause of post Polio Syndrome is unclear. It's not known whether anything can be done to prevent it.

The leading theory is that it's the result of the gradual deterioration of nerve cells in the spinal cord (motor neurones) that were damaged by the Polio virus. This would explain why the condition can take years to appear.

Post Polio Syndrome isn't contagious. The theory that the Polio virus may lie dormant in your body, causing Post Polio Syndrome when it becomes reactivated at a later stage, has been disproven.

It's not clear why only some people who've had polio develop Post Polio Syndrome. Those who had severe Polio when they were younger may be more likely to develop the condition.

Contacts us: 0800 043 1935
Email us: info@britishpolio.org.uk

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Lowestoft Town FC raises funds and awareness for charity

The British Polio Fellowship
4 days ago
1 min read

CEO, Kripen Dhrona holding up the Lowestoft Town FC replica shirt.

Lowestoft Town Football Club, affectionately known as The Trawlerboys, has launched a new partnership with the British Polio Fellowship (BPF) to raise awareness and funds for those living with the long-term effects of polio.

Spearheaded by club chair Colin Easton, the initiative will run throughout the 2025–26 season, which kicked off in August. As part of the campaign, the BPF logo will appear on the shorts of the first-team kit, and the club will host matchday collections, include a BPF advert in every home match programme, and dedicate at least one fixture as a BPF awareness day.

In a further show of support, the club has also added the BPF logo to the sleeve of their replica shirts, pledging to donate 2p from every sale directly to the charity.

To strengthen ties further, Lowestoft Town FC will offer free entry to the dedicated awareness match for local polio survivors. Representatives from BPF have been invited to attend and speak at the game, helping to highlight the continuing challenges faced by people living with post-polio syndrome (PPS).

“This is a fantastic opportunity for the Fellowship - to raise funds that will help us to support polio survivors emotionally and financially, and at the same time increase awareness of an often-overlooked condition,” said Kripen Dhrona, Chief Executive of the BPF. “We’re very proud to partner with Lowestoft Town FC and we’re grateful to them for giving a platform to polio survivors and their stories.”

Lowestoft Town FC currently competes in the Isthmian League North Division, having earned promotion as champions in the 2023–24 season.

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